You can use the Drug database which is a cooperation between The Porphyria
Centre Sweden and NAPOS in Norway.
European Porphyria Network
At the website European Porhyria Network
You can find links to porphyria specialist centra all over Europe. There are also texts about the different porphyria diagnoses in many languages.
RareConnect with the Porphyria Community
At the website PorphyriaCommunity in RareConnect You can read other patient’s stories, register and write your own story and questions.